Michael Urtecho Medina

“A message of faith, fight and hope”

 

My name is Michael Urtecho Medina. I am a chemical engineer, and I would like to share with you part of my life story, which has been indeed difficult; however each situation I faced since I was a child has been part of a formation process in each stage of my life.

 

Nowadays I realize that God has given me a lot of good things. The disability I endure has not been a limitation to study and excel in life; on the contrary, it was a reason to achieve what I have now. I can describe myself as a dreamer and an advocate of the rights of the disabled, and I will not rest until Peru becomes an entirely accessible country.

 

A difficult childhood

 

My parents, Sara Medina Aguilar and Wilson Urtecho Rodríguez, welcomed my birth on the 6th of November in 1969. I was a big robust who weighed 4.2 kg. However, my growth was not normal because when I was 2 years old I was unable to stand  up and always fell down. At the beginning, my relatives thought this was due to my being overweight; however, as time passed on, and the situation did not change, my parents took me to a doctor to find out what the problem was. My parents did everything possible to help me walk.

 

When I was 7 years old, my family received a hard blow at knowing the diagnosis given by a group of doctors from the United States who arrived in Trujillo. The doctors concluded that I had Muscle Hypotonia, a condition that weakens the muscles. One out of a million people suffers this disease. That was the reason that kept me from standing and walking.

 

When I was a child, I moved by dragging myself on the floor and spent time playing with my toys and marbles, unable to leave my home. It was a difficult time for my family and me since every day I saw my mother crying about my condition.

 

Fortunately, God gave me supportive and joyful sisters, who spent much of their time playing and taking care of me, sacrificing their normal activities.

 

My father usually came to lunch at 1 p.m. My mother picked me up onto the furniture and put the chessboard so that Dad and I would play chess. This happened from Monday to Saturday, and I looked forward to every afternoon so that I could play with him. I could even participate in chess contests in Trujillo and won some local championships and also at school.

 

Overcoming obstacles I went to school

 

I learned to read and write thanks to my paternal aunt Magna who taught me at home. When I was eight years old, I passed a proficiency exam with a high score which allowed me to enter the “80006 school” near my house, in a higher grade for those of my age level. I studied part of my primary education in the Dante Alighieri School. From the fourth grade on, I studied in the “Liceo Trujillo” School.

 

At school, I experienced difficult situations such as being locked in the classroom during the recess because they feared that I would fall. I was always isolated from the other boys. One time, I remember a classmate tied my hands allowing the others laugh at me.

 

As to the treatment for my rehabilitation, all I can say is that they were very painful. They stretched my muscles, knees and legs. My parents did everything they could to help me, but after a year there was not any positive outcome so they decided to cancel the therapy.

 

When I was thirteen, I was discouraged at seeing my friends, already adolescents, do things I couldn’t. Until one day, a doctor, a friend of my family, changed entirely my life. I still remember what he literally told me: “A human being is worth for his essence and for what he has in his mind and heart”. Thereafter, a radical change was made in my life. I ranked third place in all my high school, became more sociable and thereby had more friends. However, I continued to have sad periods such as when I was not able to enjoy my promotion travel and graduation party.

 

On the way to become great

 

I really wanted to become a physician. But when it was time to decide what to study, I talked with my father, and he made me see that the reality of Peru was not like in other countries where there are disabled doctors who practice, and also here medical faculties were not accessible. Then my father suggested that I study chemical engineering, a career that he would have liked to study. I accepted his suggestion because it was similar to pharmacy, a field I liked too.

 

Later, God gave me the satisfaction of going to college and getting my degree at chemical engineering. A great memory I have is that my father was my teacher in two courses, supplementary mathematics and differential calculus, since he has been a university professor for almost 31 years. I certainly made a great effort to excel in his courses.

 

The most difficult problem at the university was accessibility. The labs were located on the second floor and the tables were very high but thanks to God everything went fine. I didn’t use to take many notes because I’d rather keep the lessons in my memory.

 

I got the third place in my class during all my college studies. Then I pursued postgraduate studies in my field at the National University of Trujillo. One anecdote I remember is having studied with some of my former professors.

 

My college days meant an important change in my life. I became more mature because I had new experiences and knowledge. It is the time of professional development when you train yourself to serve your society through a profession.

 

God in my life

 

When I was 27, I was experiencing difficult moments in my life. I wanted to die. I fell a deep depression until I had the joy of getting to know God.  I remember I was campaigning for elections. I used to go from church to church until I got to a Christian community called AGUA VIVA (Living Water) then located at Peru Ave. in Trujillo. Karim León Liza was the person who kindly greeted me. Now, she is my advisor. She gave me a Bible, and I sat in the last row of chairs to read. I was with two of my friends, Jorge Sandoval, who has already passed away, and Carlos Terrones, another chemical engineer. I found a real and living God in the worship and praise.

 

I remember a funny anecdote on the first day I went to that church. I saw some little glasses on a well-decorated table, filled with wine, and some bread, so I told my friends: This meeting is great, they even give snacks. I was wrong because it was the Holy Supper that is traditionally shared in the Evangelical Church.

 

From that day on, I never get apart from God. He leads my life and every step I take. I pray every morning and try to learn, along with my wife, the Word of God by reading the Bible. One of my favorite hobbies is to listen and sing Christian music, because it makes me feel relaxed, and in spiritual peace.

 

I keep many people in a special place of my heart. . .

 

I have had a lot of friends but I specially remember my school friends: José Deza; Martin Flores Honores and Fidel de la Cuba, this latter always helped me a lot by bringing me to and from school.

 

Also, Héctor Pastor Arrelucea, and José Deza Saavedra, both chemical engineers like me. They also moved me everywhere in a mechanical chair during my college days. They even helped me get to the labs on the second floor.

 

And the two shall become one flesh...

 

When I was thirty years old I met in the church the woman who is now my wife, Claudia Vanessa Gonzales Valdivia. At the beginning, she did not pay any attention to me, so, in order to bring her attention, I brought my dog with me, a Samoyed that is totally white. Unfortunately, when I showed it to her she told me she did not like dogs, and left. However, I insisted because I saw in her great qualities as a person, and most of all, a woman who feared God, and that captivated my heart. I was charmed by the way she praised and sang to the Lord, and the way she preached.

 

We both decided to let God lead our relationship, and we did all He commands in His Word. First, we had a special friendship, then we grew closer, and finally became engaged. All this lasted for five years. We were not able to marry as soon as we wanted to, because I was out of work for three years; however, that difficulty made us grow closer. So, we started selling bread in the streets, peddling bread, biscuits, and muffins that Claudia made, from shop to shop in a van we had. I used to sell paper, and showcases in El Porvenir, a poor section of the city of Trujillo, so we were street vendors. I believe this experience formed our characters by helping us to leave our pride aside, and driving us to start from scratch, and teaching us to be humble.

 

We finally got married. Claudia is a heavenly gift for my life. She advises me, helps me, encourages me every morning, wisely corrects my mistakes. She is the perfect complement I needed in my life to reach the place I have reached so far.

 

Success eventually came

 

Finally, I had the chance to work for different private and public companies, such as the systems area of multinational Semex from Canada; I was the head of the computers systems division of the Regional Government of La Libertad. I also worked as project manager in Cervecerías Peruanas Backus&Johnston. As a result of my work, I was able to purchase an electric wheelchair and a specially-adapted van for my personal transportation. At present, I may say proudly I am the support of my family and I help my parents too.

 

I also worked as a professor teaching in different faculties in the National University of Trujillo. I used to teach Geographical Information Systems, which has to do with geographical and cartographical simulations. I sort of specialized in this topic due to the El Niño climatic phenomenon.

 

The key is not to lose hope…

 

In 2003, thanks to my courage and perseverance, I took the chance to participate in an annual project competition sponsored by the World Bank. And out of 1218 projects, only 25 were short-listed. The final day each candidate had to present his project before a panel of national and international experts. I got the third place, and received a prize of US$ 18,000 that I used to create a baker’s shop called “The daily bread from a handicapped brother”. This allowed me to give jobs only to disabled persons. Most of them are deaf or paralytic. We do not hire blind persons due to the danger they would risk with the big machines. This shop is doing pretty well, being the first of its kind in my region, and probably in my country. It is wonderful to see young people who used to be unemployed and who are now working for their families. Their parents are happy, and the media have provided wide coverage. Now, the business keeps running and there are plans to grow.

 

But there is more. The following year I won another contest sponsored by the World Bank, with a project to promote and publicize the bakery project “The daily bread from a handicapped brother”. It was surprising even for the World Bank officials that a person could win two consecutive competitions. The World Bank Director for Latin America, Marcelo Guigale, in his speech said this project set an example for the whole world, unique for its results, and that the Bank was proud to fund this kind of work. The US$ 3500 prize was used to create a website for the shop, an institutional video, and publicity spots to raise awareness about the subject of disabilities.


Politics, an opportunity to help my disabled brothers…

 

When I was 25 I used to wonder what I could do to help my disabled fellow countrymen. I could hardly sleep thinking on this, and then an idea from the Lord came to me: sending email to different people letting them know who I am, what things I have been doing, and asking them to consider the subject of disability. I sent this mail to politicians and authorities of different fields. A lot of people replied this message, one of them was the former congressman Antero Flores Araoz, another was former Peruvian president Alejandro Toledo (I still remember his peculiar tone of voice). But whom I identified myself with was Rafael Rey, the president of the political party National Renovation. I started my political career in that group, and I still continue there.

 

He was kind enough to call me and leave a message leaving his mobile phone number. I was surprised that he, being a prestigious congressman, took the time to call me. I immediately called him back, and he greeted saying, “Hi, champion”. I felt very well. He said he had read my letter and thought it was fabulous, and that he wanted to meet me and do something for the disabled. He told me he would travel to Trujillo just to meet me. At first I thought this was just a political promise, but three weeks later, he was staying in the Tourist Hotel of Trujillo. We spent a great day together, and he conveyed his values, his respect for the human being, his ethics, a lot of confidence and security. Right then I began my political career. He gave me the chance to enter politics, and on the third time I won a seat in the Congress of the Republic of Peru. I have cultivated a great friendship with Rafael, and I see him as a human being rather than just a political leader. He has always helped me and defended me even in difficult circumstances.

 

Now in the Congress…

 

One of my recent achievements has been my election to the Congress of the Republic, with a great voting from my hometown, La Libertad. For the legislative term 2006-2007, I presided over the Subcommittee on Disabled Persons, and the parliamentary friendship group PeruUSA. I have been a member of three committees: Work, Agriculture, and Health, and a substitute member of the Transportation Committee. During the 2007-2008 legislative term, a special committee on disabilities was set up and I was elected as a chairman. This group has had some achievements, and in July 2008, I was decorated with the Great Offcier medal in Congress. Now we have a printing office and bibliographical material in Braille, and we have held many social campaigns, among other activities.

 

In July 2009, a law on violations and penalties for not complying the Law on Persons with Disabilities was passed. This is historical because it will encourage respect for the rights of the disabled persons. During the 2009-2010, for the first time in Peru a member of the congressional executive bureau was a person with disability. And one more time, it was clear there are no limits for a disabled person to achieve great results if he is given the chance. I have a clear mind about my responsibility towards my fellow citizens, and particularly to the disabled persons, and that is why I make efforts to benefit those who have always been excluded in my country.

 

I must confess that during this time at the Congress, I have had mixed feelings. On one hand, a lot of joy and hope that from my position I can do a lot of good for my disabled brothers; also a lot of excitement to see so many business people, public officials, NGO workers, and many well-meaning persons who want to undertake great sustainable projects in favor of the disabled. So much joy and hope in a world where sometimes we see only indifference and indolence to others’ pain. But on the other hand, I feel in my heart certain sadness for not being able to reach all the people who need so desperately our good works, and a deep discouragement when I see some hardhearted people who can not understand that disability can reach any of us because nobody, a family member or even ourselves, is free of the possibility to become a disabled person.

 

My birth as a father… I lived the happiest and the saddest moment

 

When I was 38 years old, I always thought I had already overcome the hardest moments because I had been able to surpass all the obstacles life had placed before me, and I had decided that my disability, the greatest challenge of my life, would not keep me from achieving my dreams and goals, but I was wrong: while we are living we will always face joys and sorrows.

 

April 14th, 2008 was the happiest day for my wife and me. Life gave me a magical and incredible moment. I became the father of two beautiful girls, and happiness overwhelmed me. I thanked God for giving me this long-awaited gift.

 

Ana Claudia and Ana Rebecca came to give me their love, their joy, to enrich me as a human being, and allowed me to experience feelings as never before. God lent me Ana Rebecca for 22 unforgettable days, and then He took her back. I felt the greatest pain of my life when I saw her clinging to life to survive. It was the hardest time that left me an unforgettable lesson. Undoubtedly there are no words to describe the pain we feel when we lose a child, but now I know that God has a great purpose for me, things I may not understand now, though I am sure that one day I will see the reason why that happened. I learned the value of life, and understood that this value is in the happy moments we spend with our dear ones, no matter how short these moments may be. Those short moments are the reasons that keep us living.

 

Even if God had given her to me for a single day, I would have thanked Him the same because the memories and happiness my daughter left me changed my life forever.

 

Now I thank God for my other girl, Ana Claudia, who is doing well, and who forms my character, and that of my wife. She fills our lives with love, joy and happiness so every day is different, beautiful. I have learned to plan my time to be a husband, a father and a congressman.

 

A chance to practice the teachings left by Ana Rebecca

 

A few weeks ago doctors detected an infection in my gallbladder and they decided it had to be removed surgically. It was an apparently simple surgery, but because of my disability it posed a high risk on my health. There was no background information about even how to inject the anesthesia and how my body was going to react, particularly my muscles. Upon being anaesthetized, I had to be helped to breathe artificially, and my esophagus is very thin, so inserting those tubes would not be an easy task. In a moment I would stop breathing by myself due to the anesthesia, and nobody knew how my muscles and heart would react to that situation.

 

I passed several tests, and the day came. I placed my trust in God so that He would act through the doctors’ hands. As for me, I would fight for my life, that was my conviction as my daughter taught me to do. It was the right time to show her lesson..

 

I had the support of my wife and family, and the assistance of doctors and staff of the Central Hospital of the Peruvian Air Force. My wife was by my side during the operation, and she saw that at first there were a slight complication, but God was on my side, and then all went well.

 

I want to thank the General Director Zdenko Teply, doctors Arnaldo Muñoz Rodriguez La Rosa, Antonio Tokumoto Kishaba, Luis Alberto Flores Ruiz, and all the staff of this hospital. I thank the anesthetist, Jose Portugal Vivanco from San Felipe clinic. They all were surprised at seeing that after two days I was working again.

 

As you can see, God gave me the chance to show the teaching my daughter left me in the short 22 days I had her, and I think I did not let her down. Likewise, our loved ones teach us great lessons and in a moment we have to practice what we have learned. If you are ever given that chance, do not miss it.

 

Conclusion

 

For many, I am a model, but I, Michael Urtecho Medina, do not want to be the only one having a chance to succeed, and I want the rest of my disabled brothers to have the same opportunity, to have doors open for them, and enjoy the same possibility to reach personal fulfillment, and contribute to the development of their society.

 

This is the story of my life, and I want to share it with you with the only purpose to let you know that in Peru we only lack opportunities. God gave them to me, and now I want to fight to give them to my disabled brothers, help me to help others…

 

God bless you